Note to Project CBD:
I wish to remain anonymous at this time, for reasons im sure you can understand. But i do want our story told, as it goes on.
Our son was diagnosed with pilocytic astrocytoma, metastaic in the brain, brain stem and spinal cord and spinal cord membranes. His first MRI was done january, 28, 2013. They thought he had a horrible, malignant agressive cancer according to just the MRI.
A biopsy February 6, 2013, showed pilocytic astrocytoma with atypical behavior, indicating possible other forms of cancer. This surgery also left our son, who was 15 months old at the time, paralysed in his arms and hands and unable to even sit up on his own.
We were basically scared into allowing chemo treaments about a month after the surgery, consisting of once a week infusions of carboplatnum and vincristine. I wont even go into all the meds they had him on to battle side effects and antibiotics for precautionary reasons….
His treatments went on for ten weeks, his hair fell out, his fingernails shriveled and began to peel off. His eyelashes dissapeared, and his weight plummeted. He refused to eat most of the time and was just miserable.
Around April 15, 2013 we learned about medicinal marijuana. I began giving him small doses that week, only in edibles as i knew nothing else about ways to administer. But we were frustrated as he simply refused to eat and we knew his dose was not theraputic, according to our research.
At the time of his 9th chemo infusion, id learned to make a canabis tincture in vegetable glycerin using high cbd canabis. I slowly increased his dose as days went by. At the same time, right after his 9th infusion, we had an MRI done, without contrast (the machine broke and they werent able to get results with contrast of the brain or brain stem) but it was enough to be able to get results.
The results of the MRI done April 21, 2013 showed stable tumors, basically the same size, with a very slight, nearly immeasurable decrease in tumor size, but a decrease nonetheless. We then proceeded to allow the tenth infusion, which caused a severe, nearly fatal, allergic reaction.
Once home, we refused futher chemo (still none as of this date, 6/26/2013). We did, however begin giving large doses of high cbd, lowish thc canabis tincture orally, up to 3 times daily, never less than twice a day, administered by eye dropper, started at just drops per day, now up to nearly a dropperful, 3 times daily. He shows NO signs of being high , or “stoned”. His appetite has vastly improved, his weight is up, his sleep is no longer disturbed and he is rapidly gaining intellectually, ie, speaking more words, interacting more with family.
We also acquired a small amount of pure oil (Rick Simpson style) which i rub a small amount on his neck above where his brain stem and cord tumors are, everyday. Also rub a small amount on his gums since he wont eat the oil. (It tastes awful!)
We had another MRI done on June 21, 2013 a month after his last chemo infusion, and a month after his last, incomplete, MRI.
The results of the MRI done April21, 2013 showed stable tumors, basically the same size, with a very slight, nearly immeasurable decrease in tumor size, but a decrease nonetheless. We then proceeded to allow the tenth infusion, which caused an severe, nearly fatal, allergic reaction.
Once home, we refused further chemo ,(still none as of this date, 6/26/2013). We did, however begin giving large doses of high cbd, lowish thc cannabis tincture orally, up to 3 times daily, never less than twice a day, administered by eye dropper, started at just drops per day, now up to nearly a dropperful, 3 times daily. He shows NO signs of being high or “stoned.” His appetite has vastly improved, his weight is up, his sleep is no longer disturbed and he is rapidly gaining intellectually, i.e, speaking more words, interacting more with family.
We also aquired a small amount of pure oil (Rick Simpson style) which i rub a small amount on his neck above where his brain stem and cord tumors are, everyday. Also rub a small amount on his gums since he won’t eat the oil. (It tastes awful!)
We had another MRI done on June 21, 2013 a month after his last chemo infusion, and a month after his last, incomplete, MRI.
This MRI, taken a month after chemo stopped, and high cbd cannabis tincture was given, showed….
Significant tumor shrinkage! As well as less enhancement of all tumors, AND reduced vascularity!! In english, that means the tumors are less dense amd have less blood in them and less supplied to them!
This is huge news for us. I”m sure you can understand the implications of such an experiment. His doctors have NO idea we are giving canabis. We have very good reasons for keeping them in the dark about it. They told us to stop vitamins, to skip healthy food and just give him whatever he will eat, and they were VERY against even giving him marinol for symptom managment. They were/are extremely against any natural treatments to say the least. The kind of docs thta would call CPS if they knew the truth.
Now you know why i cant tell the world quite yet….not until he is cured completely. We cant risk losing him to govt nor risk losing access to his medication. He does have his med marijuana card, thank God for that compassionate doctor!
S.
Editor’s Note: We hope you’ll send updates and that your son’s healing continues.
